I have been reading your blog and you are going through an ordeal with your heath and the health system. I hope that you can get to the bottom of what is causing the problems and get some relief.

You mention on your blog that you feel that inflammation may be a root cause. If you have not seen it yet, the “Cooling Inflammation” blog by Dr. Art Ayers is interesting reading. It is very technical in places, but there is also a lot of practical information on inflammation:

http://coolinginflammation.blogspot.com/

Hope this helps, and best wishes!
Steve
My Health Software support

I have always enjoyed a healthy blood pressure – somewhere around 90/60 or 100/70. My resting heart rate is 45 and my respiration is 7 or 8 (low, but my oxygen levels are good). My temperature is also low. 96.8 Fahrenheit, rather than 98.6, which is the norm. I am not an athlete, and can rarely work out, so I’m not sure why everything is so low. Thyroid is always normal. I am also in the normal range for body weight, and have just lost 10 pounds because of the nausea and loss of appetite I’ve had. I don’t need to lose any more.

A few weeks ago it’s like my body went into overdrive and now, when I get up and move around my bp goes way up. Last night it went up to 160/100, but usually when I’m up moving around it’s at around 140/90. Then when I recline again, it goes down to normal ranges. With the high bp, my heart rate soars to somewhere between 120 or 130.

I do have an underlying condition, in the form of Ehlers Danlos Syndrome, which is a connective tissue disorder due to faulty collagen. EDS can cause the body to whack out in different ways.

I am not sure what has caused this sudden spike, but I have had a growth on my sacrum for several years. Doctors here in the U.S. have refused to take it seriously, but it has grown astronomically. It is causing much discomfort now and I’m fighting to have it biopsied. It has spread into different parts of my torso, and maybe even into my arm. I am hoping it isn’t malignant, and trying to stay positive until I get the right doctor. Our system here is not a good one.

I also develop edema during the day, but oddly, it is not in my lower legs at all. Just my trunk, upper legs, and upper arms–sometimes in my hands. I believe this is lymphatic–there are lots of lymph nodes in the sacrum and the largest part of this mass rests right there. When I am up, the fluid accumulates and causes horrible pressure and pain, along with a rise in bp, heart rate, heart arrhythmia, and even sometimes, temperature. When I lay down for a little while, I feel almost normal again–good even. I wake up in the morning feeling great, until I am upright. Sad, eh? And I can no longer work out.

I will be starting the beta-blocker Propranolol today, but I’m nervous about it. However, I feel the effects of the intermittent hypertension so I will do it.

The main thing for me is getting this mass biopsied once and for all, and dealing with whatever it is. Then seeing if the medication alleviates some of the symptoms. The lymphatic thing–well, I don’t even know what kind of doctor to go to for that, and my doctor doesn’t seem to know either. If it’s lymphatic, I can’t take a diuretic because that’s considered bad.

If anyone is interested in my story, you can to to my blog. I’ve started keeping a photo/video journal to show what’s going on. And still, some doctors have come right out and suggested that I’ve doctored them. I’m so fed up with our system that I could scream. I think I have a good g.p. but I think he’s frustrated with my case.

Thanks for sharing your story.
Cheers!

My blog is at http://www.glueless1.blogspot.com

I wrote an article about the medications I was put on here: http://www.my-health-software.com/view/items/blood-pressure-medication.html

Now I just take 8mg Coversyl and 5mg Novarsc a day.

Best wishes with getting your BP down!
Steve
My Health Software support

Any help would be appreciated.

Thanks

Angela
(wales, uk)

For the last month I have had lightheaded feelings, weakness, and major headaches. I take Lexapro and Xanax for anxiety which I have had since 14 and I’m now 27 years old.

Today I went to the doctor and my BP was at a all time high of 174/114. I then launched in to a panic attack scared.
I had to wait in the hall and my doctor said it was not life threating but yes it was high and I could have white collar symptoms. But again he also mentioned when having attacks my blood pressure goes up and down. Once I had a attack and i was st 158/98. Then 20 minutes later 130/80. So I know what he means. Well today i am starting 25 mg of Atenlol. I have actually taken it before when I was 21. But I stopped and my blood pressure was good so they said I could stop. Anyways I am 30 pounds bigger since then and understand. Life change is going to happen. I just spent money on a 24 hour fitness pass and I will get through all this. We all do… I do not wanna feel like I have and so I wont! I am taking my life back and controlling this and will with my medications hard works and exercise.
Hang in there all cause we all can make this better. We must try and not give up!

Joshua from Texas

Long term alcohol abuse/binge drinking or high colestoral will cause this, not to mention portal hypotension or any other serious desease.

regards.

Sorry to hear about your health problems.

I am not medically trained, and I can’t answer your question. I would highly recommend seeking your answers from your doctor or health care provider, who would be in the best position to help you with this issue.

Best wishes for your health!
Steve
My Health Software support